“Jockey Club Human Libraries Hub” (Human Libraries Hub) is a research project operated by universities and community partners, which aims to explore methods supporting the education sector and the public to deeper understand various kinds of real-life stories, and to promote social connectedness and inclusiveness. The project includes a variety of activities, such as reading web-based materials, attending workshops and submitting reviews. The project has been approved by the Human Subjects Ethics Sub-committee of The Hong Kong Polytechnic University (Reference Number: HSEARS20180302004). Basic data policies are as follows: a) The personal information collected from you will be kept confidential and used for the purposes of verifying your identity, processing your request, answering your inquiry, promoting activities organized by and/or related to the project, administration and academic research; b) The project will not disclose any of your personal information to the other party. We will also take reasonable steps to protect your personal information from loss, misuse, unauthorized access, disclosure, alteration, or destruction. Anyone who violate the privacy policies will be subject to disciplinary or legal actions; c) The data collected from research activities will be destroyed within 3 years after the completion of the research. If you have any questions about the research study, please contact the project’s principal investigator Dr Chitat Chan (tel: 34003682; email: firstname.lastname@example.org). You can also write to Miss Cherrie Mok, the secretary of the Human Subjects Ethics Committee of the PolyU. Please read carefully this consent statement prior to providing any information and using the project website:
You are at least 16 years of age.
You agree to participate in the project and you understand that you may be invited to attend events, such as reading web-based materials, attending workshops and submitting reviews, and sharing stories .
You may be invited to fill out online questionnaires.
Prior to using the project website and related services, you will be required to submit your personal information, including but not limited to your name, a unique login ID and password, telephone number(s), gender, occupation, education level and e-mail address.
You are obligated to take all necessary steps to safeguard your own username and passwords from being made available to unauthorized parties.
You understand that your participation in the project is voluntary. If you decide to participate in the project, you may withdraw at any time. If you decide not to participate in the project or if you withdraw from participating at any time, you will not be penalized.
Under the Personal Data (Privacy) Ordinance of Hong Kong, you are entitled to request access to your personal information collected by us and request the correction or deletion of your personal information from our database by making a written request over email to email@example.com.
Carmen Yau Ka-man has spinal muscular atrophy (SMA). She is currently pursuing a PhD in the Department of Applied Social Sciences at the Polytechnic University, where she is researching how social media helps women with disabilities strengthen their positive social identity. Carmen has championed the rights of persons with disabilities for many years. In 2009, she co-founded the Home Office Scheme. The scheme encourages public and private sector employers to hire persons with impairments and allow them to work from home, so that they, too, can have the opportunity to put their talents to use. In 2016, an American pharmaceutical company successfully developed medicine to treat SMA. Carmen and other people with SMA formed an advocacy group on their own initiative to collect the details of SMA patients, in order to campaign for the government to bring the medicine to Hong Kong. Carmen wants not only to “live well”, but also to “die well”. In 2014, she and her friends joined a Death Café in the United States. Through group discussions, participants thought about death. Carmen’s inspirational story has earned her the title of “life warrior”. In 2013 she won the South China Morning Post’s Spirit of Hong Kong Award, and in 2017 she was named a Regeneration Warrior.