Provision of personal data is necessary for processing and following up on requests/inquiries that you submit.
Registration and login is necessary under some circumstances prior to the use of this website. You may be required to submit your personal information, including but not limited to your name, a unique login ID and password, telephone number(s), gender, occupation, education level, and e-mail address.
Insufficient personal data may prevent HLH Project from providing a required service or answering an inquiry.
The personal information collected from you will be kept confidential and used for the purposes of:
verifying your identity
processing your request
answering your inquiry
promotion of activities organized by and/or related to the HLH Project
administration and academic research
HLH Project will not disclose any of your personal information. We will also take reasonable steps to protect personal information you submit and to protect such information from loss, misuse, unauthorized access, disclosure, alteration, or destruction. We reserve the right to use agents, who are bound by strict confidentiality guidelines, to perform storage and processing functions. Only designated employees or agents who need to carry out legitimate activities/functions are permitted to view your personal data. Employees or agents who violate the privacy policies will be subject to disciplinary or legal actions. However, we are not responsible for any loss, misuse, unauthorized access, disclosure, alteration, or destruction of your personal information that may occur under circumstances beyond our control. You are also reminded to take all necessary steps to safeguard your own username and passwords from being made available to unauthorized parties.
Under the Personal Data (Privacy) Ordinance of Hong Kong, you are entitled to request access to your personal information collected by us and request the correction or deletion of your personal information from our database by making a written request over email to firstname.lastname@example.org .
Carmen Yau Ka-man has spinal muscular atrophy (SMA). She is currently pursuing a PhD in the Department of Applied Social Sciences at the Polytechnic University, where she is researching how social media helps women with disabilities strengthen their positive social identity. Carmen has championed the rights of persons with disabilities for many years. In 2009, she co-founded the Home Office Scheme. The scheme encourages public and private sector employers to hire persons with impairments and allow them to work from home, so that they, too, can have the opportunity to put their talents to use. In 2016, an American pharmaceutical company successfully developed medicine to treat SMA. Carmen and other people with SMA formed an advocacy group on their own initiative to collect the details of SMA patients, in order to campaign for the government to bring the medicine to Hong Kong. Carmen wants not only to “live well”, but also to “die well”. In 2014, she and her friends joined a Death Café in the United States. Through group discussions, participants thought about death. Carmen’s inspirational story has earned her the title of “life warrior”. In 2013 she won the South China Morning Post’s Spirit of Hong Kong Award, and in 2017 she was named a Regeneration Warrior.